Monday, August 24, 2009


So, it would be bad enough for my dad to have rare autoimmune disease and...
  • have it go on for 10 years
  • have a stem cell transplant
  • catch the flu post-transplant
  • happen to have swine flu
  • is having such a hard time holding down food my mom bought a blender (mmmm... the milkshake diet?)
But did it have to be the rare version of swine flu that is immune to the regular swine flu meds?  There have been 9 documented cases in the world- 2 prior cases in the USA, and my dad makes number 3.  He is now officially an international health hazard.  Impressive.

Maybe it isn't a good idea to ask what happen to cases 1 and 2.... Because the answer was, "One survived."  Of course, my dad had and important medical call to take, so I had to wait another 10 minutes before finding out that the 'non-survivor' was already terminally ill.  (Yeah, not post-transplant, no-immune system ill - I asked.)
Dad Sent Us All This Photo, Sums Things Up...

It does make finding balance a bit of a struggle.  Finding joy in the everyday wonderfulness of life.  Going to work, and school, and hanging out with friends, and how does one enjoy that knowing all this is going on?  Shouldn't I feel like crap about it?  

Well NO!  Or at least, not when I can help it.  Sure, there are times it sucks that he is so ill (ok, it sucks all the time), but if I've learned one thing through all this, it's that I can't let it control my life.  Of course, far easier said than done.  And I've spend my fair share of mopping time wondering how to balance it all.  Still trying to figure that one out.  But it's not something I'm giving up on.

So for all those wondering how Steve is doing, that sums it up.  

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